Monday, November 22, 2010; Brandon was scheduled for an MRI and potentially an ICP monitor earlier today. An afternoon sedation vacation showed promise and the procedures were cancelled. This evening one of Brandon's relapses made completing the MRI a better decision.
The procedure scheduled for 19:30 and they anticipated that he would be in his room by 20:30. We went to the STICU at 20:30 and were told it would be 22:30 before he would return.
22:30: Brandon is not in his room. The anonymous voice on the intercom told us they have added additional tests and it would be at least another hour to hour and a half to complete. She stated she did not know what the tests were or how long they would take nor any information on Brandon's condition.
23:30: Intercom rang for five minutes without an answer. Team members would look at me through the windows in the door, you could hear ringing in the unit all without an answer. A women from housekeeping came to the STICU and we asked if she would ask someone from inside the unit to come talk to us. A team member finally came to the door, we asked her if we could see Brandon. She went into the unit, spent a few minutes then returned telling us he was "downstairs" getting some tests.
We asked for an update informing her we have not had any communication since 19:00. She stated that she had no further information and did not know how long Brandon would be getting the undefined tests. We politely asked her if someone would come get us as soon as he returned. She assured us she would.
Another team member, from housekeeping, who overheard our conversation with the nursing staff came to the waiting room just before midnight. She asked who we were waiting for. We expressed our frustration at having been without any information since 19:00. She left the room. Went down the elevator and within four minutes, we were provided with the first information in over 5 hours. The housekeeper told us he was doing fine and that the tests they were doing would take about three hours. We thanked Heavenly Father for a good housekeeper.
We appreciate the importance of the care and attention being given Brandon, however, you have to wonder if withholding information is a ploy to get dad admitted to the cardiac ICU and Aimee, Brad, and Eric admitted to the psych ward. Every institution is looking at maximizing profits in troubled times.
00:43 The nursing supervisor came to the waiting room and told us Brandon was just now being brought back to his room. He was in MRI this entire time and everything was fine. The MRI and MRI-A all take time. We told her we didn't want to interfere with getting him settled, it was nice to have some information about his condition and the tests.
01:03 We were finally were able to see Brandon in his room. The MRI wresults come tomorrow. He is paralized by meds and has his highest level of Propofol flowing to date - 55 mcg/kg/min.
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